Security and confidentiality
At the heart of the NJR is a database of all the joint replacement information that is collected by hospitals, including patients' personal information (subject to patient consent).
To avoid sending paper records through the post and to ensure maximum protection to the data, the NJR uses an electronic system for collecting the data. This includes a secure link for transferring the data from the hospital to the central database. All the data held on the central database is encrypted to provide further protection.
Who can use the data?
Patients’ personal data is treated as confidential at all times and cannot be used outside of the NJR. This data is only available to the patient that it relates to and their surgeon.
Procedures are in place to protect the information and to keep it confidential. Data collected via the NJR may be used for medical research but only if it has passed ethical review and if the outcomes are expected to provide significant benefits to the healthcare of patients. However, any data provided will be anonymised so that it is not possible to identify individuals.
In accordance with the Data Protection act (1998), patients can request a copy of the personal information that the NJR holds about them at any time. Please contact the NJR Centre for further information or see the FAQs and patient information leaflet under 'Related documents' to the right of this page.